Wednesday, October 30, 2013

October 30, 2013

I arrived in Houston yesterday. Due to a late flight and a slow shuttle, I missed Casey's appointment with Dr. Thomas. He filled me in. They are going ahead with the transplant as scheduled on November 22nd. Casey immediately had his pick line removed. Today we were apartment hunting. We found 2, now we have to choose. It is like House Hunters MD Anderson. Stevie will come down here on November 10th and start her testing on November 11th. Charlie and Melissa are allowing her to stay at their house. I know Stevie is anxious to see them. Charlie was her coach throughout high school. She hasn't seen Connor since he was a baby. Casey is having Caroline look into flights so he can spend Christmas with his puppy. She wants to fly first class, so I think we will have to leave her at home.
Tomorrow it is back to the hospital for EKG, echo cardiogram, complete pulmonary function and dental exams and a clinical visit with the clinical research coordinator. This week has turned out different than we had planned, but we are getting a lot done,

Monday, October 28, 2013

October 28, 2013

My last post I said Stevie is not a donor match for Casey, well Friday evening Casey got a phone call saying Stevie is a match and she needs to be in Houston on November 11 for pre-testing. They are going to do a bone marrow transplant. Casey's previous transplants have been stem cell transplants. They will put Stevie under and stick her with 80-100 needles in her hip to scrape out her bone marrow. I think this will take place around November 16th. Casey got the phone call while he was on deck coaching. Pretty much they told him in 3 days he would be going to Houston and staying until mid March. Kinda got his head spinning! Stevie was right on it, she booked her flight (one way), she is very excited to be able to do this for Casey. She will now have something to hold over his head forever!
Casey left today, and I will be leaving tomorrow for Houston for what we thought would be round 5 of 5 treatments. I suppose we will be apartment hunting instead....I am not really sure. The transplant team said they still have to run it by his oncologist. Dr. Thomas is a force to be reckoned with. If she says no, there is no way the transplant is happening as scheduled. I sure am glad to have her on our side. I am sure we will know more tomorrow.
Because holiday flights are hard to get at a reasonable price, Casey booked his flight home already for the day before Thanksgiving according to his treatment schedule. I have been nagging him for years about his procrastination. Well I guess this one came back to bite me. Will let you know more when I find out!

Thursday, October 3, 2013

October 3, 2013

Since my last post, we found out that Stevie is not at match for the transplant. We still do not know what is going to happen with that.
My sister, Debbie had to go to MD Anderson to do a lab inspection. Of all the hospitals in the country and the timing of it all. She only does two a year. Debbie invited me to come out with her. All I had to do was get a plane ticket, she had the hotel. How could I pass that one up? I watched the prices of the flights and thought it wasn't meant to be, then a week before leaving a price came up that I couldn't turn down. Debbie flew out on Wednesday and did her inspection on Thursday and Friday. I flew out on Thursday, had dinner with Casey, Charlie, Melissa and Brandon. I got to meet the puppy, and Casey dropped me off at her hotel that evening. On Friday, I went to Casey's appointments with him and by that time Debbie was finished with her inspection. Debbie was able to slip away from her inspection on Thursday to go see Dr. Thomas with Casey for his weekly appointment. Casey joined us at Debbie's hotel on Friday and Saturday night. She was staying in a 5 star hotel. We always stay in the Quality Inn. There was a big difference. I felt like a celebrity at the Hotel ZaZa. Friday night we went out to dinner and a waiter dropped a whole tray of food on Casey. The restaurant was dark and we panicked thinking Casey was bleeding (not a good thing when you have blood cancer), turns out it was refried beans. Dinner was on Casey (literally) that night. The restaurant comped all of our meals. Casey had Saturday off, so we took Aunt Debbie to some of our favorite places. Casey and Lauren found a great place for brunch, so we went there, and I really enjoyed the Kemah Boardwalk, so we went there too. Sunday, Casey had his hospital visit and we checked out of the Hotel ZaZa, took Aunt Debbie to the airport and checked into the Quality Inn for one night. Casey and I went to the Woodlands Mall and took a water taxi ride and he went into Williams and Sonoma with me. He is much more patient than his father. Monday I flew home and Casey is back at Charlie's house. I can tell he is really feeling at home with them. It makes me feel so good. Charlie and Melissa are such wonderful people, I hope they know how much I appreciate all that they have done for us!!
Casey comes home on October 12 for 2 weeks and I am back to work and at home with Gary and the dogs, wondering where the next step will take us.