Monday, July 26, 2010

Sorry, it has been a while since I have posted.  Casey is doing incredibly well.  He had his central line removed, with a tear in his jugular, but that has healed and the stitches have been removed. He was able to take his first normal shower in over 10 months (and he kept it under 30 minutes).  Life is pretty much back to normal.  He is back to coaching full time, and has not even hit day 60 post transplant.  The second transplant took hold and Casey is looking and feeling great.  His hair has starting growing back, and his doctor visits have been cut back to once every three weeks.  These last couple of weeks have been better than I could have ever hoped for.  He is out golfing right now.  The only sad thing about this is he will soon be leaving me (and the puppies) and moving back into his own house.
As always, thank you for all of your prayers and support.

Tuesday, July 6, 2010

July 6, 2010

It is Stevie today! My mom and dad are taking a much needed week down at their place in Lewes, DE.  Casey, Kyle, Erik and I were all able to spend the holiday weekend with them and enjoy some time on the boat.  Casey had to be careful about the sun, but the boat has an awning and he wore a high SPF with long sleeves!  We were able to catch up with some old friends, the Donatos.  Casey and Justin met when they were both representing Middle Atlantic at the Zone All-Star Team when they were around 12-13 years old.  They remained in contact and both continued swimming for the University of North Carolina. Mr. and Mrs. Donato live close to my parent's place, Justin lives in Boston, and Amanda (Justin's sister) lives in Mount Joy.  It just so happened we were all in the area this past weekend so we went for a VERY GOOD dinner at the Donatos house.  It was a great night of old stories and catching up on new ones.  There were a lot of laughs!
On Sunday, Casey and Kyle went to the PGA event down by Philly.  They had tickets for the clubhouse and all of the VIP tents.  They had a blast and were able to see what they are doing wrong with their golf swings.  I doubt that will help though!  They need a lot more than that!
Casey hasn't been to Hershey since last Tuesday, but he will be going tomorrow.  He has an appointment to get the port out of his chest!!  There are 3 long tubes hanging out of his chest that they put medicines, liquids, etc into and take blood out.  This is it minimize all of the poking and prodding, but it gets in the way.  He can't sleep on his stomach, take a normal shower, swim, seatbelts rub, and it hurts to do a golf swing.  Casey has to flush it to keep it clean everyday.  When he was flushing it out today he threw the plastic syringe down like he would be spiking a football and said "Last time! Hopefully forever!"  So needless to say, he is pretty excited to get it out!  It's just another step closer to living a normal life!  Hurry Day 100!